All forms of nystagmus are involuntary, meaning people with the condition cannot control their eyes. Nystagmus improves slightly as a person reaches adulthood; however, it worsens with tiredness and stress.
Having nystagmus affects both vision and self-concept. Most people with nystagmus have some sort of vision limitations because the eyes continually sweep over what they are viewing, making it impossible to obtain a clear image. Some people with nystagmus have so many vision problems that they can be considered legally blind.
If you have nystagmus, not only is your appearance affected, but you literally see in a way that is different from people who don't have the condition. Your eyes are in constant motion. To see better, you may need to turn your head and lock your eyes into what's called the "null point." This is a certain head angle that makes the eyes move the least, stabilizing the image for better vision.
When you have nystagmus, you must deal with the personal and social consequences of this difference. Nystagmus can affect nearly every aspect of your life, including how you relate to other people, your educational and work opportunities and your self-image.
Can Nystagmus Be Treated?
Children with nystagmus may need extra help in learning to adapt to schoolwork and social situations.
Several medical and surgical treatments that sometimes help people with nystagmus are available. Surgery usually reduces the null positions, lessening head tilt and improving cosmetic appearance.
Drugs such as Botox or Baclofen can reduce some nystagmic movements, although results are usually temporary. Some people with nystagmus have benefited from biofeedback training.
If you have nystagmus, make sure you undergo regular eye exams so you can be monitored for both health and vision issues.
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